SURGERY

Here's the low down on what happened today in D.C. Jackson will be going in on Wed. of next week for removal of the nasty lymph nodes, one of them has grown half it's size in a week. He's doing great otherwise, his eating is slowing somewhat still trying to figure out if it's nerves or is something really going on that shouldn't. We're going to have our original surgeon Dr. Sandler, Jackson said no once else is allowed to touch him but him. Thank God he's back in town and had a slot available next Wed., we'll know the time Tuesday night when the hospital calls with all the info. I finally received his report's from his last scan, blood work and to be perfectly honest no one knows what's going on at this point. His blood work is so overwhelming to look at, my eye's actually started to cross reading everything today. His LDH is high, this is a tumor marker blood test they ran last week on him, ya read that and see where you mind takes you !!! Platelet's are low, white blood and red blood normal, see why every ones rubbing their head's. Jackson was never normal anyways and when he was diagnosed it's wasn't normal, less than 5% are diagnosed bi-lateral and less than 3 % unfavorable. Someone correct me if I'm wrong I don't have all the data in front of me right now. Scan report just as confusing to me, nodule noted on one of his lung's. Their pretty sure it's a sublpeural lymph node, OK another lymph node, to creepie. Remaining right kidney has some changes can't be sure what it is but looks like scarring. So I had to absorb all this tonight on my back deck while my little man jumped happily on the trampoline, the same trampoline I swore I was going to tare down two year's ago.
My mother came and picked him up tonight because he wanted to get away, I'm sure from us. Were trying very hard to act normal at this point, it just so damn hard not to worry and I think he's feeling it. Poor kid, I feel like screaming, someone wake me up. I've never prayed so hard in my life for my child to have an infection, something we can treat with med's. I'll update when I can Wed. he'll be coming home right after he wakes up from surgery. Should have result's no later than Friday but the tumor review board meets on Wed.'s so hopefully we'll have an early slot and we can have at least 20 doc's looking at all the report's and pathology of these lymph node's.
Love
Cheri