One Crazy Week !!!

Man has this been one crazy week, let me start at the beginning. Jackson had scans and a full work up Monday at Children's. Everything is fine, we were there all day, left the house at 7:00, not to bad, there was no traffic, holiday. Got there at 8:30 scanned at 10:30, went upstairs to the fourth floor. Waited, waited and waited, at 1:30 Dr. Dome pops his head in and tells Jack he'll be back at 2:15 wants to review the scans himself, well mind you I was getting a soda. While walking back in the room everything started spinning and couldn't breath for a min. some kind stranger even ask me if I was OK. At that point I didn't even know what was going on, get back to the room, Jack tells me whats going on and I freak what did he say, what did he say, exactly what I told you, he'll be back at 2:15 !!! So the world stopped for 45 min's, in the mean while my heart is racing, I'm sweating and started pacing back and fourth from the playroom to the room. While Jackson and Evan played happily in the art room. Jackson also got to put his autograph on the art room door (on the glass) aah a pretty little rainbow with the sun. As soon as the doctor came, I don't think he sat down even and I barked what was on the scan!! NOTHING, he wanted to take a closer look at his spine and bones. ( THANK YOU GOD) Jackson has had some major pains lately, he even has pain walking in Target one of his favorite stores.
Here's the low down, his reflexes are shot!!! Vincristine (chemo) is the culprit. Now we know why he can't ran that well and kick the soccer ball as well as the other kid's. Poor guy all he wants to do is be a normal kid. I keep asking him if he wants to quit and his response is NO WAY!!! Should have known, this kid is just one mean fighting machine. He's so amazing, quit is not in his vocabulary and I hope he's stays this way because we all know life is tough.
He did have to have his blood redrawn on Tuesday his electrolytes were out of whack. He already had an appointment for them dreaded immunizations at his main doc's office, their going to start with 3 or 4 at a time and the flu shot.
Here goes the crazy part, my oldest daughter, Lauren walks into my room about the time we were headed out and had a funny look on her face, wasn't responding to me. I thought maybe her blood sugar is low. (for those who don't know she's had diabetes since she was 2) I tried to get her to sit down so I could check her blood and the battle was on, she was kicking, screaming and pinching me. I threw her on my bed, screamed for Evan to get some coke, juice whatever as long as it had sugar in it !! He comes up stairs bringing coke and starts laughing because he thought we were playing, wrestling, ya right!! I screamed it's not funny. Needless to say it was to late for coke, juice and cake frosting. I grabbed an emergency glugagon kit, a hormone that's naturally produced by the liver when our blood sugar drops dangerously low, her liver doesn't produce it anymore, the needle is HUGE, I've only had to use it one other time and she was 2 and easily maneuvered. This time she's my size and fighting so I acted like I was going to hug her and stabbed the needle in her butt and she rolled over on it and injected the rest in her self by rolling over on it. In the midst of all this I somehow called 911 and my call was routed to a county here in Va. that I've never heard of and finally Spotsylvania came on line. Eventfully they showed up, by them she was coherent and I was able to check her blood, only up to 68 but she could drink. That means her blood sugar was way below 20!!!! Spent all day here at the local hospital, all to be told she was fine and her insulin pump needed to be adjusted, Duh. So why did her doc tell us to go to the ER to be checked when he could have done this. I swear there's a conspiracy with the doctor's and hospital's. $$$$$ Thursday was pretty normal. Yesterday while shopping at Costco Jack gets a call from the school, Jackson has pink eye. WHAT he was fine this morning and before lunch completely red and swollen. There's more drama to this week but I don't feel like writing a novel.
As for me we're heading out of town for 4 day's to Vegas, after this week, we really do need a change of scenery. My dear mother has been nominated for the substitute mom for the next couple of day's. God Bless her, it's a zoo here.
Jackson's Birthday Party was awesome, all his little buddies came. I'll post picture's as soon as I can. I want to thank everyone who came, he had the time of his life. Thank God for all the wonderful people in our lives.
Also these folks could use some extra prayers right now:
http://www.caringbridge.org/visit/HollynPeterson, Hollyn has relapsed for the third time.
http://www.caringbridge.org/visit/meghanhenry, Meghan has also relapsed for the third time. She's even in college right now trying to get her treatment, going to school to become a nurse. NOT FAIR!!
I asking all my friends and family to sign the Childhood cancer petition and join our group so that we can finally get the same attention that other cancers get. http://curechildhoodcancer.ning.com/ You may have noticed some of the flyer's I put up at Gaint, Starbucks and other stores. Thank You for your support.


Love
Cheri

HAPPY BRITHDAY !!!!

Yes, you heard right my little man is going to be the big 8 on the the 8th of this month. He's having a big bash at Chuck E. Cheese on Sunday, we're expecting quite a few kiddos to help him party it up !!! This has to every parents favorite place to be on a Sunday afternoon :)
Scaniexty is setting in he's scheduled for his three month follow up on the 13th, should be pretty uneventful, now I just have to convince myself. Any suggestions on how to get rid of the pit in stomach would be greatly appreciated ? Why is it that Dads play this stuff off so good and most mommy's freak out!!! I know Jacks daddy said once," If he fell apart than the whole house would", I guess that's a good point. Someone has to be strong because I'm surely not the one. I over react at an grown toenail. I find myself still checking him almost every night for a fever and he's fine, in fact he tells me to leave him alone, poor kid he doesn't have a shot at any privacy. Even his brother and sister are under him all the time.
I know some of you may be curious about the music, my sweet step daughter Tracy and daughter Lauren finally got the play list up for me. Jackson's favorite songs!! He listened to "I had a bad day" on repeat while he got radiation at NIH. Hey it worked and it really was a bad time, according to him the worst part was being still. Kids their amazing, we'd crack under some of the stuff they've gone through. If I learn one thing it is not to sweat the small stuff.
I'm gonna ask for prayers for another little angel, www.caringbridge.org/visit/sarahmacy she passed Wed., like I've said before CANCER SUCKS !!!(and no Wilms is not the cancer to have) Sorry if that offends anyone but that's just the simple truth. I remember the doctor telling us if my child were to have cancer this would be the one. Your kidding me right, I've even had a teacher tell me wilms is not that bad, so tell me this why are all these beautiful, innocent little babies dieing from this so called cancer to have???? OK, I'll stop for now. Still pisses me off !!!!
Then there are so many new kids starting this jouney, it makes me sick. Our little buddy Pablo could use some extra prayers to, he just started his first 5 day round and they have plenty more to do. He's endured as much as Jackson on top of that he had 3 surgeries last month. His web site is: http://getwellpablo.blogspot.com/
he's adorable and was suppose to start school last month, his diagnoses and treatment is almost identical to Jacksons. I only hope he has as easy as a time as Jackson did. Not that it's easy, Jackson breezed through treatment in comparison to some kid's. We we're definitely blessed in that department.
Time to run, he'll be home from school soon. He's getting pumped up about this weekend. No rest for the weary this weekend.