Dear Friend's and Family,
Every year a 23 foot Awareness tree is placed in the lobby of the Old Post Office in D.C. and decorated with thousands of gold ribbons, each ribbon bearing the name of a child who has or has had cancer. I'm asking all of my friends and family to purchase a gold ribbon for 5.00 in honor of Jackson or another child you may know or have known that has or had cancer. I know times are tight for all of us right now but it would mean the world to me and Jackson if we could see hundred's of kid's we know with their name's on these ribbon's tied to that tree. I know so many of these kid's and I can't personally buy one for each kid, I think I came up with a total of 500.00 for just the kid's I know and believe me if I had the money I would. I keep telling Jackson he's a STAR. nows my chance to prove it!!! I know god has amazing plan's for this little guy here on earth. He actually thinks he's a ROCK STAR, oh well I can't convince him now maybe later. The website to purchase ribbon's is : http://www.candlelighters.org/cancerawarenesstree2008.stm
I'm not done just yet one more favor for all of us, I'm collecting new toy's for "Trevors Treasures" he is young boy we met while on treatment, he's off treatment and doing beautifully, pray that it continues that way. Here's the website http://trevorstreasures.org/index.htm please no stuff animal's and pre-packaged toy's because these have to be wiped down before entering the hospital. This is an important cause to me simply because we were so blessed when Jackson was in the hospital he was always showered with toy's, lots of love and affection. I know there where time's when some the children didn't even have anyone to sit with them but a volunteer. There was also a baby that was dropped off because she had cancer, she was finally adopted by a staff member of the hospital. God Bless her. Some suggestions that come to mind is Crayola stuff, they have some of the neatest new stuff that light's up, I think they would enjoy playing with these at night, gift card's too. Just a thought, if you have any questions please feel free to call me 540-446-5808 or Shannon, Trevor's mommy, her number is on the website. I'm hoping to have my Tahoe loaded down with toy's by Dec. 15th for her to take to the hospital.
Now some of you may have gotten this letter already in an e-mail sent out.
Jackson is doing great, we've had quiet a few appointment's in the last few weeks for him. First was his heart test in DC by the way came back perfect!! Some of the chemo's he has received can cause heart damage, most likely not for another 5 to 10 year's. As a precaution he's going to get checked yearly for the rest of his life, small price to pay for your life. He still continues to do great in school and is such a social butterfly, of course a male one, he would faint if he heard me say that.
Cute story, my little man was craving Reese's peanut butter cups the other day, we didn't have any so he took it upon his self to make some and here's his recipe (his version):
Get ya some cupcake holder's fill the bottom with fudge you use on Ice Cream
Top with Peanut butter
Then top that with more fudge
Stick in freezer for 10 min's
Pretty good recipe huh?
I'm hoping all of my wonderful friend's can help us out with the above group's. There are so many wonderful Childhood Cancer Groups out there but these are special to me and my family.
Thank you and God Bless
Cheri
Ya know I should really learn to proof read better.
Tuesday, November 18, 2008
Thursday, November 6, 2008
Sunday, November 2, 2008
Is this a reason to celebrate????
I chose the title to this update for many reasons. First Nov. 4th marks two years since Jacksons diagnoses of cancer. Nov. 3rd we went to the doctor again for what we thought was constipation,(this had been going on for two week's) his doctor examined him again, felt the lump, said his spleen felt enlarged, if only it was gonna be that easy. We couldn't get in for a ultra sound till the next morning so we went home got a good night's sleep, little did I know that would be the last good night's sleep I would ever have. Woke up early the 4th to get him to the hospital for his test, first we had to check a job site of mine and he had blast climbing and playing on the dirt mound's, so much fun we had to stop at K-mart by my moms house to buy some clothes!!! I'm so glad now I let him play in that dirt, any other time I would have kept him strapped to the car. We got to the hospital for the test and I started taking pictures of him with my cell phone, just playing around and I picked him up to put him on the chair in the waiting room and he smacked the crap out of me in the face and no, he he's never done that so I sat him on the chair and told him he was in time out.
We got back to the room did the ultra sound and was told to go to waiting room. OH how oblivious I was !!! The phone rang in the room and it was his primary doctor, oh godddddd, go to Fairfax we need to ran some more tests. I don't think he hinted to anything of course that day is blank for me maybe his dad remembers more because I sure as Hell don't, only bit's and pieces. We got to Fairfax and checked in, don't remember how we got back there. All I know is we were there Oct. 22nd and we're told he was fine even with us telling the ER doctor his belly looked bigger. (Quack) Needless to say I read the new ER doctor the riot act, by then I think my mom and dad were there too. Did the CT and bam, next thing I knew we were being rolled up to the 4th floor, all I remember is thinking to myself why the HELL are we going to the HEM/ONC floor. Hahhh, still oblivious, don't remember being told all this, oh the tricks the mind can play on us!!! Then D day came, surgery Nov. 5th, he was so scared, I laid on the bed with him as they rolled us down the hall he buried his little head in my chest, all the while the child life lady was telling him about getting a new port to put medicine in, WHAT, when was that decided. I felt like everyone knew what was going on but me, looking back I was in shock. While waiting my dear and best friend in the whole world showed up to sit with us,(didn't even know she knew) even brought me dental floss she knows I hate stuff on or in between my teeth and of course loads of candy she knew I was gonna need it!!! Friend's, I can honestly say I only have one that truly gets me and that's her, Thank you, ANITA. I love you. Jack, his daddy and my mom and dad were there too, I don't think they would have had it any other way, my mom and dad lived at the hospital with me that first week, couldn't have done it without, any of them. The doctor came out and told us it looked like Wilms, what the hell is Wilms? I've been trying to figure this out the whole time. We got back up to the room and all he did was sleep by then his room resembled a toy store!!! In the middle of the night he pulled his NG tube out, the tube that was draining his stomach to give his gut the rest it needed to heal, I remember refusing to let the nurse put it back in, until she called the doctor and made sure he needed it. Well needless to say he needed it. His incision was only 4 or 5 inch's across the top of his belly button then. I know, only 4 or 5 inches now it's all the way across his tummy. So that's how it all started. The strange thing about all of this is I knew in the back of my head all a long something seriously was wrong with my baby even at birth that's another story in it's self, here's the brief version. Jackson was born not breathing, diagnosed with Autosomal Recessive Polycystic Kidney Disease. (never had it, mis-diagnosed) I almost lost him while carrying him at two month's, now talk about a fighter he's almost died on us three time's. That's a tough cookie. God has amazing plans for this little man, I don't know what they are yet, I do know he's touched a lot of lives and mine is changed forever. Everything he does is simply amazing!!
Funny story from the beginning of this this nightmare, we were walking down the hall trying to kill time before his first surgery and as we were walking down past the nurses station he yelled at them, "YOU FORGOT TO FEED ME THIS MORNING", he couldn't eat before surgery and was hating life. Now we're worried about him gaining to much weight, he's on 1 percent milk and weighs 69 pounds. He was 42 in Feb. 07 after his tumor and kidney removal surgery's, wow big difference and loving it!!! Hope everyone had a safe and happy Halloween. We only made it around the block once, he still made out like a bandit.
Love
Cheri
We got back to the room did the ultra sound and was told to go to waiting room. OH how oblivious I was !!! The phone rang in the room and it was his primary doctor, oh godddddd, go to Fairfax we need to ran some more tests. I don't think he hinted to anything of course that day is blank for me maybe his dad remembers more because I sure as Hell don't, only bit's and pieces. We got to Fairfax and checked in, don't remember how we got back there. All I know is we were there Oct. 22nd and we're told he was fine even with us telling the ER doctor his belly looked bigger. (Quack) Needless to say I read the new ER doctor the riot act, by then I think my mom and dad were there too. Did the CT and bam, next thing I knew we were being rolled up to the 4th floor, all I remember is thinking to myself why the HELL are we going to the HEM/ONC floor. Hahhh, still oblivious, don't remember being told all this, oh the tricks the mind can play on us!!! Then D day came, surgery Nov. 5th, he was so scared, I laid on the bed with him as they rolled us down the hall he buried his little head in my chest, all the while the child life lady was telling him about getting a new port to put medicine in, WHAT, when was that decided. I felt like everyone knew what was going on but me, looking back I was in shock. While waiting my dear and best friend in the whole world showed up to sit with us,(didn't even know she knew) even brought me dental floss she knows I hate stuff on or in between my teeth and of course loads of candy she knew I was gonna need it!!! Friend's, I can honestly say I only have one that truly gets me and that's her, Thank you, ANITA. I love you. Jack, his daddy and my mom and dad were there too, I don't think they would have had it any other way, my mom and dad lived at the hospital with me that first week, couldn't have done it without, any of them. The doctor came out and told us it looked like Wilms, what the hell is Wilms? I've been trying to figure this out the whole time. We got back up to the room and all he did was sleep by then his room resembled a toy store!!! In the middle of the night he pulled his NG tube out, the tube that was draining his stomach to give his gut the rest it needed to heal, I remember refusing to let the nurse put it back in, until she called the doctor and made sure he needed it. Well needless to say he needed it. His incision was only 4 or 5 inch's across the top of his belly button then. I know, only 4 or 5 inches now it's all the way across his tummy. So that's how it all started. The strange thing about all of this is I knew in the back of my head all a long something seriously was wrong with my baby even at birth that's another story in it's self, here's the brief version. Jackson was born not breathing, diagnosed with Autosomal Recessive Polycystic Kidney Disease. (never had it, mis-diagnosed) I almost lost him while carrying him at two month's, now talk about a fighter he's almost died on us three time's. That's a tough cookie. God has amazing plans for this little man, I don't know what they are yet, I do know he's touched a lot of lives and mine is changed forever. Everything he does is simply amazing!!
Funny story from the beginning of this this nightmare, we were walking down the hall trying to kill time before his first surgery and as we were walking down past the nurses station he yelled at them, "YOU FORGOT TO FEED ME THIS MORNING", he couldn't eat before surgery and was hating life. Now we're worried about him gaining to much weight, he's on 1 percent milk and weighs 69 pounds. He was 42 in Feb. 07 after his tumor and kidney removal surgery's, wow big difference and loving it!!! Hope everyone had a safe and happy Halloween. We only made it around the block once, he still made out like a bandit.
Love
Cheri
Saturday, October 18, 2008
One Crazy Week !!!
Man has this been one crazy week, let me start at the beginning. Jackson had scans and a full work up Monday at Children's. Everything is fine, we were there all day, left the house at 7:00, not to bad, there was no traffic, holiday. Got there at 8:30 scanned at 10:30, went upstairs to the fourth floor. Waited, waited and waited, at 1:30 Dr. Dome pops his head in and tells Jack he'll be back at 2:15 wants to review the scans himself, well mind you I was getting a soda. While walking back in the room everything started spinning and couldn't breath for a min. some kind stranger even ask me if I was OK. At that point I didn't even know what was going on, get back to the room, Jack tells me whats going on and I freak what did he say, what did he say, exactly what I told you, he'll be back at 2:15 !!! So the world stopped for 45 min's, in the mean while my heart is racing, I'm sweating and started pacing back and fourth from the playroom to the room. While Jackson and Evan played happily in the art room. Jackson also got to put his autograph on the art room door (on the glass) aah a pretty little rainbow with the sun. As soon as the doctor came, I don't think he sat down even and I barked what was on the scan!! NOTHING, he wanted to take a closer look at his spine and bones. ( THANK YOU GOD) Jackson has had some major pains lately, he even has pain walking in Target one of his favorite stores.
Here's the low down, his reflexes are shot!!! Vincristine (chemo) is the culprit. Now we know why he can't ran that well and kick the soccer ball as well as the other kid's. Poor guy all he wants to do is be a normal kid. I keep asking him if he wants to quit and his response is NO WAY!!! Should have known, this kid is just one mean fighting machine. He's so amazing, quit is not in his vocabulary and I hope he's stays this way because we all know life is tough.
He did have to have his blood redrawn on Tuesday his electrolytes were out of whack. He already had an appointment for them dreaded immunizations at his main doc's office, their going to start with 3 or 4 at a time and the flu shot.
Here goes the crazy part, my oldest daughter, Lauren walks into my room about the time we were headed out and had a funny look on her face, wasn't responding to me. I thought maybe her blood sugar is low. (for those who don't know she's had diabetes since she was 2) I tried to get her to sit down so I could check her blood and the battle was on, she was kicking, screaming and pinching me. I threw her on my bed, screamed for Evan to get some coke, juice whatever as long as it had sugar in it !! He comes up stairs bringing coke and starts laughing because he thought we were playing, wrestling, ya right!! I screamed it's not funny. Needless to say it was to late for coke, juice and cake frosting. I grabbed an emergency glugagon kit, a hormone that's naturally produced by the liver when our blood sugar drops dangerously low, her liver doesn't produce it anymore, the needle is HUGE, I've only had to use it one other time and she was 2 and easily maneuvered. This time she's my size and fighting so I acted like I was going to hug her and stabbed the needle in her butt and she rolled over on it and injected the rest in her self by rolling over on it. In the midst of all this I somehow called 911 and my call was routed to a county here in Va. that I've never heard of and finally Spotsylvania came on line. Eventfully they showed up, by them she was coherent and I was able to check her blood, only up to 68 but she could drink. That means her blood sugar was way below 20!!!! Spent all day here at the local hospital, all to be told she was fine and her insulin pump needed to be adjusted, Duh. So why did her doc tell us to go to the ER to be checked when he could have done this. I swear there's a conspiracy with the doctor's and hospital's. $$$$$ Thursday was pretty normal. Yesterday while shopping at Costco Jack gets a call from the school, Jackson has pink eye. WHAT he was fine this morning and before lunch completely red and swollen. There's more drama to this week but I don't feel like writing a novel.
As for me we're heading out of town for 4 day's to Vegas, after this week, we really do need a change of scenery. My dear mother has been nominated for the substitute mom for the next couple of day's. God Bless her, it's a zoo here.
Jackson's Birthday Party was awesome, all his little buddies came. I'll post picture's as soon as I can. I want to thank everyone who came, he had the time of his life. Thank God for all the wonderful people in our lives.
Also these folks could use some extra prayers right now:
http://www.caringbridge.org/visit/HollynPeterson, Hollyn has relapsed for the third time.
http://www.caringbridge.org/visit/meghanhenry, Meghan has also relapsed for the third time. She's even in college right now trying to get her treatment, going to school to become a nurse. NOT FAIR!!
I asking all my friends and family to sign the Childhood cancer petition and join our group so that we can finally get the same attention that other cancers get. http://curechildhoodcancer.ning.com/ You may have noticed some of the flyer's I put up at Gaint, Starbucks and other stores. Thank You for your support.
Love
Cheri
Here's the low down, his reflexes are shot!!! Vincristine (chemo) is the culprit. Now we know why he can't ran that well and kick the soccer ball as well as the other kid's. Poor guy all he wants to do is be a normal kid. I keep asking him if he wants to quit and his response is NO WAY!!! Should have known, this kid is just one mean fighting machine. He's so amazing, quit is not in his vocabulary and I hope he's stays this way because we all know life is tough.
He did have to have his blood redrawn on Tuesday his electrolytes were out of whack. He already had an appointment for them dreaded immunizations at his main doc's office, their going to start with 3 or 4 at a time and the flu shot.
Here goes the crazy part, my oldest daughter, Lauren walks into my room about the time we were headed out and had a funny look on her face, wasn't responding to me. I thought maybe her blood sugar is low. (for those who don't know she's had diabetes since she was 2) I tried to get her to sit down so I could check her blood and the battle was on, she was kicking, screaming and pinching me. I threw her on my bed, screamed for Evan to get some coke, juice whatever as long as it had sugar in it !! He comes up stairs bringing coke and starts laughing because he thought we were playing, wrestling, ya right!! I screamed it's not funny. Needless to say it was to late for coke, juice and cake frosting. I grabbed an emergency glugagon kit, a hormone that's naturally produced by the liver when our blood sugar drops dangerously low, her liver doesn't produce it anymore, the needle is HUGE, I've only had to use it one other time and she was 2 and easily maneuvered. This time she's my size and fighting so I acted like I was going to hug her and stabbed the needle in her butt and she rolled over on it and injected the rest in her self by rolling over on it. In the midst of all this I somehow called 911 and my call was routed to a county here in Va. that I've never heard of and finally Spotsylvania came on line. Eventfully they showed up, by them she was coherent and I was able to check her blood, only up to 68 but she could drink. That means her blood sugar was way below 20!!!! Spent all day here at the local hospital, all to be told she was fine and her insulin pump needed to be adjusted, Duh. So why did her doc tell us to go to the ER to be checked when he could have done this. I swear there's a conspiracy with the doctor's and hospital's. $$$$$ Thursday was pretty normal. Yesterday while shopping at Costco Jack gets a call from the school, Jackson has pink eye. WHAT he was fine this morning and before lunch completely red and swollen. There's more drama to this week but I don't feel like writing a novel.
As for me we're heading out of town for 4 day's to Vegas, after this week, we really do need a change of scenery. My dear mother has been nominated for the substitute mom for the next couple of day's. God Bless her, it's a zoo here.
Jackson's Birthday Party was awesome, all his little buddies came. I'll post picture's as soon as I can. I want to thank everyone who came, he had the time of his life. Thank God for all the wonderful people in our lives.
Also these folks could use some extra prayers right now:
http://www.caringbridge.org/visit/HollynPeterson, Hollyn has relapsed for the third time.
http://www.caringbridge.org/visit/meghanhenry, Meghan has also relapsed for the third time. She's even in college right now trying to get her treatment, going to school to become a nurse. NOT FAIR!!
I asking all my friends and family to sign the Childhood cancer petition and join our group so that we can finally get the same attention that other cancers get. http://curechildhoodcancer.ning.com/ You may have noticed some of the flyer's I put up at Gaint, Starbucks and other stores. Thank You for your support.
Love
Cheri
Friday, October 3, 2008
HAPPY BRITHDAY !!!!
Yes, you heard right my little man is going to be the big 8 on the the 8th of this month. He's having a big bash at Chuck E. Cheese on Sunday, we're expecting quite a few kiddos to help him party it up !!! This has to every parents favorite place to be on a Sunday afternoon :)
Scaniexty is setting in he's scheduled for his three month follow up on the 13th, should be pretty uneventful, now I just have to convince myself. Any suggestions on how to get rid of the pit in stomach would be greatly appreciated ? Why is it that Dads play this stuff off so good and most mommy's freak out!!! I know Jacks daddy said once," If he fell apart than the whole house would", I guess that's a good point. Someone has to be strong because I'm surely not the one. I over react at an grown toenail. I find myself still checking him almost every night for a fever and he's fine, in fact he tells me to leave him alone, poor kid he doesn't have a shot at any privacy. Even his brother and sister are under him all the time.
I know some of you may be curious about the music, my sweet step daughter Tracy and daughter Lauren finally got the play list up for me. Jackson's favorite songs!! He listened to "I had a bad day" on repeat while he got radiation at NIH. Hey it worked and it really was a bad time, according to him the worst part was being still. Kids their amazing, we'd crack under some of the stuff they've gone through. If I learn one thing it is not to sweat the small stuff.
I'm gonna ask for prayers for another little angel, www.caringbridge.org/visit/sarahmacy she passed Wed., like I've said before CANCER SUCKS !!!(and no Wilms is not the cancer to have) Sorry if that offends anyone but that's just the simple truth. I remember the doctor telling us if my child were to have cancer this would be the one. Your kidding me right, I've even had a teacher tell me wilms is not that bad, so tell me this why are all these beautiful, innocent little babies dieing from this so called cancer to have???? OK, I'll stop for now. Still pisses me off !!!!
Then there are so many new kids starting this jouney, it makes me sick. Our little buddy Pablo could use some extra prayers to, he just started his first 5 day round and they have plenty more to do. He's endured as much as Jackson on top of that he had 3 surgeries last month. His web site is: http://getwellpablo.blogspot.com/
he's adorable and was suppose to start school last month, his diagnoses and treatment is almost identical to Jacksons. I only hope he has as easy as a time as Jackson did. Not that it's easy, Jackson breezed through treatment in comparison to some kid's. We we're definitely blessed in that department.
Time to run, he'll be home from school soon. He's getting pumped up about this weekend. No rest for the weary this weekend.
Scaniexty is setting in he's scheduled for his three month follow up on the 13th, should be pretty uneventful, now I just have to convince myself. Any suggestions on how to get rid of the pit in stomach would be greatly appreciated ? Why is it that Dads play this stuff off so good and most mommy's freak out!!! I know Jacks daddy said once," If he fell apart than the whole house would", I guess that's a good point. Someone has to be strong because I'm surely not the one. I over react at an grown toenail. I find myself still checking him almost every night for a fever and he's fine, in fact he tells me to leave him alone, poor kid he doesn't have a shot at any privacy. Even his brother and sister are under him all the time.
I know some of you may be curious about the music, my sweet step daughter Tracy and daughter Lauren finally got the play list up for me. Jackson's favorite songs!! He listened to "I had a bad day" on repeat while he got radiation at NIH. Hey it worked and it really was a bad time, according to him the worst part was being still. Kids their amazing, we'd crack under some of the stuff they've gone through. If I learn one thing it is not to sweat the small stuff.
I'm gonna ask for prayers for another little angel, www.caringbridge.org/visit/sarahmacy she passed Wed., like I've said before CANCER SUCKS !!!(and no Wilms is not the cancer to have) Sorry if that offends anyone but that's just the simple truth. I remember the doctor telling us if my child were to have cancer this would be the one. Your kidding me right, I've even had a teacher tell me wilms is not that bad, so tell me this why are all these beautiful, innocent little babies dieing from this so called cancer to have???? OK, I'll stop for now. Still pisses me off !!!!
Then there are so many new kids starting this jouney, it makes me sick. Our little buddy Pablo could use some extra prayers to, he just started his first 5 day round and they have plenty more to do. He's endured as much as Jackson on top of that he had 3 surgeries last month. His web site is: http://getwellpablo.blogspot.com/
he's adorable and was suppose to start school last month, his diagnoses and treatment is almost identical to Jacksons. I only hope he has as easy as a time as Jackson did. Not that it's easy, Jackson breezed through treatment in comparison to some kid's. We we're definitely blessed in that department.
Time to run, he'll be home from school soon. He's getting pumped up about this weekend. No rest for the weary this weekend.
Thursday, September 25, 2008
Finally !!!
Hey bet everyone thought we fell off the planet!! No news is good news at least in my mind. Jackson is doing great!! We had an awesome summer, stayed busy busy, swimming almost everyday at the pool. He attended Camp for kid's with cancer and had a blast and here I was worried to death!! He didn't even miss us, can you imagine that?
School has started and he has amazing teacher, what a relief to have someone so caring but strong enough to handle him not that he's bad, just a handful, typical boy. He's spent his fair share of time at the doctor's to, scared the crap out of everyone when he came home from camp. He apparently fell and hurt his back and has had back pain for a month, raced downtown for a quick ultrasound and thank God it was nothing. I think a large part of why I've avoided updating is because if you don't see it, it's not there and as most of you'll know I'd like to run a way for this, there's just not stopping it. We've lost some many beautiful young souls to this hateful disease. Just recently http://www.caringbridge.org/visit/samanthacrowell , beautiful young lady with so many dream's and http://www.caringbridge.org/visit/emmajordan she passed away on her Make A Wish trip and that's just two. Jackson's buddies Justin and Parker passed. It stinks, it just stinks!!!
Here's some info I've wanting to get out:
HELP ST. JUDE BY CREATING A PEPPER AT CHILI'S TO FIGHT CHILDHOOD CANCER!!!!
St. Jude Children’s Research Hospital and Chili’s Grill & Bar® announced the kick-off of their fifth annual Create-A-Pepper to Fight Childhood Cancer campaign. Now through September 30, Chili’s restaurants around the country and, for the first time, in Puerto Rico, are marking National Childhood Cancer Awareness Month by inviting people to get creative and raise funds to help St. Jude find cures and save children with cancer and other catastrophic childhood diseases.Guests at participating Chili’s restaurants can contribute to St. Jude in multiple ways:
- Make a donation to St. Jude and receive a Create-A-Pepper chili pepper coloring sheet designed for display at restaurants during the month.
- Purchase Create-A-Pepper T-shirts that can be customized with permanent marker.
- Buy a customized Create-A-Pepper key that can be cut for use at home or the office.
- Eat at Chili’s on Monday, Sept. 29, when Chili’s will donate 100 percent of profits from participating restaurant sales to St. Jude.
Visit http://www.createapepper.com/ and to make an online donation.
PASS IT AROUND!!!!
GET YOUR FRIENDS/FAMILY TOGETHER!!! TRUST ME ITS SUCH AN AMAZING EVENT!!
St. Jude Children’s Research Hospital and Chili’s Grill & Bar® announced the kick-off of their fifth annual Create-A-Pepper to Fight Childhood Cancer campaign. Now through September 30, Chili’s restaurants around the country and, for the first time, in Puerto Rico, are marking National Childhood Cancer Awareness Month by inviting people to get creative and raise funds to help St. Jude find cures and save children with cancer and other catastrophic childhood diseases.Guests at participating Chili’s restaurants can contribute to St. Jude in multiple ways:
- Make a donation to St. Jude and receive a Create-A-Pepper chili pepper coloring sheet designed for display at restaurants during the month.
- Purchase Create-A-Pepper T-shirts that can be customized with permanent marker.
- Buy a customized Create-A-Pepper key that can be cut for use at home or the office.
- Eat at Chili’s on Monday, Sept. 29, when Chili’s will donate 100 percent of profits from participating restaurant sales to St. Jude.
Visit http://www.createapepper.com/ and to make an online donation.
PASS IT AROUND!!!!
GET YOUR FRIENDS/FAMILY TOGETHER!!! TRUST ME ITS SUCH AN AMAZING EVENT!!
_________________________________________________________
CureSearch now provides a way to donate online directly to the Wilms' Initiative for research into curing Wilms' Tumor. If you are interested in donating, you can click on this link,
http://www.curesearch.org/wilmstumor/
Where you can scroll down the page to "Fund the Cure," and click on "Donate Now." Following these steps will insure that your donation is directed to the Wilms Initiative. Support the research into finding the cure!!
_________________________________________________________
Thursday, September 25, from 5-8 p.m., nearly 1,400 Cold Stone Creamery® locations nationwide, including Guam and Puerto Rico, will host the World’s Largest Ice Cream Social, a fundraiser to benefit the Make-A-Wish Foundation.
· During the event, ice cream lovers can get a FREE 3-ounce serving of either Emily or Jack’s Creation and make a donation to the Foundation.
· Emily’s Creation consists of Nutter Butter® ice cream blended on a cold granite stone with yellow cake, Kit Kat® candy and white chocolate chips. Jack’s Creation consists of marshmallow ice cream with OREO® cookies, chocolate chips and fudge mixed in.
· By visiting your local Cold Stone Creamery on Thursday, September 25, the entire community can join this nationwide effort to help grant wishes to Illinois wish children, all while enjoying mouthwatering ice cream!
The month of September is dedicated to raising funds for the Make-A-Wish Foundation. For only a $1 donation to the Make-A-Wish Foundation, you can inscribe your name on a Wish Star to be posted in stores during the month.
We hope to see you there! If you have a Cold stone Creamery near you. We'll be there around 6:00 pm.
· Emily’s Creation consists of Nutter Butter® ice cream blended on a cold granite stone with yellow cake, Kit Kat® candy and white chocolate chips. Jack’s Creation consists of marshmallow ice cream with OREO® cookies, chocolate chips and fudge mixed in.
· By visiting your local Cold Stone Creamery on Thursday, September 25, the entire community can join this nationwide effort to help grant wishes to Illinois wish children, all while enjoying mouthwatering ice cream!
The month of September is dedicated to raising funds for the Make-A-Wish Foundation. For only a $1 donation to the Make-A-Wish Foundation, you can inscribe your name on a Wish Star to be posted in stores during the month.
We hope to see you there! If you have a Cold stone Creamery near you. We'll be there around 6:00 pm.
OK and last but not least: Sept is CHILDHOOD CANCER AWARENESS MONTH AND SEPT. 13TH IS CHILDHOOD CANCER DAY. I know I've been pretty slow lately just bare with me I'm trying to get it together. Not only did cancer rob my baby of his childhood and innocence. It robbed our family of so much that I couldn't possibly put it all down on paper. I only hope I can get my head screwed back on right but I have feeling it'll never be the same and no I don't need a doctor to talk to, although I do wish there was a magic pill I could swallow to make all the nightmares go away!! I want to leave you guy's with a poem that just hit me in the gut when I read it. Let me know what you think, I know a lot to other cancer mom's and dad's have read it. I think the general public needs to read it to.
I HOPE...
I hope you never have to hear the words, 'Your child has cancer.'I hope you never have to hear, 'The prognosis is not good.'
I hope you never have to prepare your child to undergo radiation or chemotherapy, have a port surgically inserted into their chest, be connected to IV poles.
I hope you never have your child look at you with fear in their eyes and say, 'Don't worry Mommy, everything will be okay' or 'Mommy am I going to die?
'I hope you never have to hold your child as they vomit green bile.
I hope you never have to feed them ice chips for lunch.
I hope you never have to watch the 'cure' you pray for slowly take away their identity, as they lose their hair,become skeletal,swell up from steroids,develop severe acne,become barely or unable to walk or move,and look at you with hope in their eyes and say,'It's going to be okay, Mommy.
'I hope that you never have to stay in the hospital for weeks, months, or years at a time, where there is no privacy, sleeping on a slab, with your face to the wall, where you cry in muffled silence.
I hope you never have to see a mother, alone, huddled, in a dark hospital corridor...crying quietly, after just being told, 'There is nothing more we can do.
'I hope you never have to watch a family wander aimlessly, minutes after their child's body has been removed.
I hope you never have to use every bit of energy you have left, with all of this going on around you to remain positive, and the feelings of guilt, sorrow, hope and fear, overwhelm you.
I hope you never have to see a child's head bolted to the table as they receive radiation.
I hope you never have to take your child home (grateful but so afraid) in a wheelchair because the chemo and radiation has damaged their muscles, 35 pounds lighter, pale, bald, and scarred.And they look at you with faith in their eyes and say, 'It's going to be okay Mommy.
'I hope you never have to face the few friends that have stuck beside you and hear them say, “Thank God that is over with”, because you know it never will be.Your life becomes a whirl of doctors, blood tests and MRI's and you try to get your life back to 'normal'.While living in mind-numbing fear that any one of those tests could result in hearing the dreaded words...'The cancer has returned' or 'The tumor is growing.'And your friends become even fewer.
I hope you never have to experience any of these things...Because...only then...Will you understand...(author unknown)
Now stop crying, get mad and support some of these function's.
Love to you all and God Bless
Cheri
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